Our Story

 

PSP & CBD Foundation, Inc. is a 501©3 non-profit organization that assists with funding for research toward a cure and other social programs for the betterment of people suffering with the neurodegenerative diseases Progressive-Supranuclear Palsy (PSP) & Corticobasal Degeneration (CBD). We are based in Bedford, VA.

Our Board, members, and staff are volunteer workers. We are extremely grateful for their support for our mission! Thank you to all of our volunteers not listed below! People Supporting People Cures Brain Diseases! 

George Hlinko

Co-Founder

George was a retired General Contractor and beloved member of the Bedford Community, who struggled for 9 years with the neurodegenerative diseases Progressive Supra-nuclear Palsy and
Corticobasal Degeneration. He continued to educate others on these rare brain diseases and highlighted their individual symptoms and care until he passed. George knew the desperate need for awareness of these neurodegenerative diseases and the outcry from fellow warriors needing support. He founded this nonprofit in order to further awareness and research into PSP and CBD, as well as help support others and their families who struggle with these neurodegenerative diseases. George donated his brain to the Brain Bank at the Mayo Clinic in Jacksonville Florida to further research efforts with PSP and CBD for over 20 years to come!

 

Dayna Hlinko, M.C.D.

President, Co-Founder

Dayna is a licensed Speech-language Pathologist experienced in providing individualized speech, language, cognitive, and swallowing therapy to individuals with neurological disorders and diseases. Dayna has founded this nonprofit to increase PSP and CBD Awareness in the medical community and the general public, fund research efforts for these brain diseases, and provide support to those who struggle with PSP and CBD.

 

 

John Bratton

Regional Vice President, Co-Founder

John is a Structural Welder in Newport News, VA. He founded the PSP and CBD Foundation to promote awareness for further funding for research and to support those with PSP and CBD and has a personal experience with these neurological conditions.

Debra Hlinko

Vice President, Co-Founder

Debra is a special education paraprofessional in Virginia. She cared for her husband, Co-founder George Hlinko, for the duration of the progression of these neurodegenerative diseases and provided advocacy to medical professionals regarding PSP and CBD. She founded the nonprofit to improve awareness, increase research efforts for treatments and cures, as well as support those and their caregivers who battle daily with PSP and CBD.

Amy Clatterbaugh

Treasurer, Co-Founder

Amy is a loan officer with Embrace Home Mortgages and assists with the financial management within the Foundation and our events. Amy founded the PSP and CBD Foundation, Inc. to support those who struggle with PSP and CBD and to increase awareness of these neurodegenerative diseases to improve research funding for treatments and a cure.

 

Lindsey Morris

Secretary, Co-Founder

Lindsey is a nursing student in Virginia. She is experienced in providing education and training to medical professionals for
individualized care of those with PSP & CBD. Lindsey founded the PSP and CBD Foundation to promote awareness of these two neurodegenerative diseases, to improve funding for research, and to support those struggling with PSP and CBD.

 

Derek Chiulli

Executive Director of Patient Advocacy & Support

Derek is the E.D. of Patient Advocacy & Support. He provides support and resources to individuals diagnosed with PSP and CBD and their loved ones worldwide. Derek is also a motivational speaker and provides support to individuals who are amputees and individuals battling a variety of diagnoses.

 

 

Melissa Burton

Executive Director of Events and Fundraising

Melissa is a special education instructor and is the Executive Director of Events and Fundraising for the Foundation. Melissa works rigorously to promote awareness, support, and accelerate researching funding for progressive supranuclear palsy and corticobasal degeneration.

 

Contact Us: info@pspcbdfoundation.org

Phone: 540-425-0467

Your contribution makes a huge difference in the lives of many!